If your initial contact with an allopathic (western) medical doctor goes well, I will be surprised. Of all the doctors I have spoken to, only one has been aware of the FDA mandated box label on Cipro prior to my sharing the knowledge, and all of them have exhibited an immediate resistance to believing the truth. Universally, it has been believed that my symptoms are the result of some mysterious, psychological or neurological disease, and most definitely NOT caused by Cipro toxicity. If you make the mistake of sharing your suspicions or beliefs (about Cipro) with a doctor and back up your perspective with any supportive evidence found on the internet, you may as well start shopping for a straight jacket, because you’ve most likely just been diagnosed as CRAZY. Most allopathic doctors have been completely brainwashed into believing that if it is on the internet, it isn’t valid, and that is the FDA says it is safe, then it is safe. So, if you are like me, you will concede that there is a lot of bogus information on the net and you’ll put away the “unverified” information you got from Google, and produce the prescription insert the pharmacist gave you with your prescription. That should be good evidence, right? I mean we are talking about the package insert prepared by the drug manufacturer, and under the heading “adverse side effects” all of your symptoms are listed, so that should mean something, right? But if your doctors are anything like mine have been, then they will discount that too. In fact many doctors I have spoken to will only validate information found in medical journals (good luck finding those) and information provided by the FDA. I don’t understand why the doctors have ANY faith in the FDA when you consider that more than 50% of the drugs approved by the FDA are later found to be unsafe (for more information on the FDA, go to the section Lawsuits and the FDA). And this is even more confusing to me: Why do these doctors claim to trust the FDA, but when provided the box label issued by the FDA, continue to doubt the validity of your claim? Personally, I suspect that their egos are to blame for this bizarre phenomenon of refusing to believe factual information UNLESS THEY READ IT BEFORE YOU DID. In a nutshell, it has been my experience that doctors know very little IN GENERAL, even less about toxicity, and even less about Cipro Toxicity. So when you challenge their understanding about medicine or the medical profession, you are immediately discounted as either a lunatic or a nuisance, and your relationship will be strained. I could go on and on about this subject, but it takes me off my course.
So, let’s set aside the resistance you meet with the doctors themselves and just look at what the western medical world has to offer you. Well, I will tell you right now, be prepared for tests. Lots of tests. Blood tests of every imaginable kind: general blood counts, organ functions, toxicology, rheumatology, histamology, immunology… and the list goes on. If you were generally healthy prior to this event, most if not all of these tests will be negative. I don’t even know how much blood has been extracted from my body, and only two anomalies have been found: my red blood cell count was nominally high and my AHA was nominally high, and both tests were discarded as being irrelevant in value. I did not have an IgE test, not that it matters, because my main point here is: that after all the blood work, all the MRI’s, NCS (nerve conduction studies), spinal taps, ultrasounds and x-rays, even if you are diagnosed with Fluoroquinolone Toxicity Syndrome, there is still very little your medical doctor can do for you. The basic protocols of treatment are along the lines of pain management and psychiatric medicine. These drugs can generally prolong your condition and make you feel worse. Don’t take my word for it, do the research. Anti-inflammatories, corticosteroids, anti-depressants and anti-psychotics have really complicated things for a lot of people suffering FTS. In fact, many of those medications are contraindicated and exasperate the condition. As for physical therapy, please be careful. If you are suffering tendon injuries, it is important to note that the treatment for medically induced tendinopathies is different than if it is injury related (see some articles here), and very few physical therapists know the difference. Under the wrong treatment protocol, you can make your condition worse, even permanent.
If you have already suffered through enough “medical” care, you may find yourself looking for alternatives to western medicine or for the illusive Cipro “cure”. When I was floxed, I was already resistant to the western medical perspective for most situations, and I actually turned to a Naturopathic Medical Doctor on day one. Naturopathic physicians have just as little experience in treating Cipro toxicity as any other type of doctor, but in my opinion, their arsenal of treatment options is more diverse and readily available. I have experimented with IV (intravenous) Glutathione (supports the detoxification process in a BIG way), IV Meyers (offers maximal nutritional support to your blood, tissues and cells of vitamins, minerals and amino acids so that your systems can function in an optimized way), IV h2o2 (intensively oxygenates the blood, theoretically pumping your cells full of oxygen and forcing toxins out), b-12 Injections (I could write an entire website on the benefits of B vitamins in general as well as how they are significant to this particular illness) , homeopathy (including a homeopathic Cipro “cure”), color-puncture therapy (an alternative to acupuncture), hydrotherapy (stimulates your organs thereby enhancing the flushing of toxins), sauna therapy (sweating out toxins), and the list goes on…. I can’t report to you the precise effectiveness of each treatment since many of these treatments were taken in conjunction with other treatments, but I do believe that these treatments kept my body in its most optimum condition for surviving this syndrome.
Whether or not you choose a Naturopath, an Allopath, an Osteopath, a Homeopath, an Auyervedic practitioner, a Somatic practitioner, a Network Chiropractor, an Herbalist, an Acupuncturist, all of the above or none of the above, you should have ONE trusted health care provider to manage all of your treatments. There are many benefits to thinking outside the box when it comes to health care, but you need someone who understands how so many of these modalities affect one another with the use of various treatments. Or, at the very least, find practitioners who are willing to collaborate with each other on your case. You can get yourself into trouble otherwise. Finding that right person may take a lot of work, and if you are really sick, I would turn this project over to someone you trust, then interview a few people until you find the person that you resonate with. Also, you should be prepared to travel for good health care, especially if you live in a rural or suburban environment. However, alternative approaches to health care are gaining in notoriety and acceptance by mainstream thinkers, so you might find someone rather close to home. And finally, be prepared to pay. I am disappointed when I here about people who are not willing to spend money outside of insurance premiums for unconventional medical care. If conventional medicine can’t give you the results you want, look somewhere else, even if you have to pay. For me, although spending thousands of dollars on anything (and yes, you might spend that much) is terrifying in certain ways, I can’t imagine NOT spending whatever it takes to feel good. What wouldn’t you spend to get your life back? Would you rather be incapacitated, or in debt? That’s the question where this subject is concerned.
In conclusion, while my goal is to bring attention to the many treatment alternatives available to fluoroquinolone victims, I do believe a common sense warning is in order. In the wake of great controversy over the existence of this website, a valid point has been brought to my attention regarding the use of ANY treatment when healing from Fluoroquinolone Toxicity Syndrome. And that point is that because so little is understood about this condition, and because this condition commonly effects the central and peripheral nervous systems, and because this condition can present itself in a myriad of ways and vary immensely from person to person, there isn’t ANY treatment that has been proven to be safe for treating this specific condition. What works for one person may not work for another, and depending on where a person has progressed in their flox or the severity of their flox, a treatment that has had remarkable results for one person may have nominal or disappointing results for another. Please use caution, common sense and trusted medical advice before taking ANY treatment protocol, including supplements. Thank you.
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