Let me just start out by saying that I am so sorry that you or someone that you love needs to be seeking guidance and support for fluoroquinolone toxicity. When I was “floxed” in 2010, there wasn’t a website like this for me to turn to. I was alone and I was scared and there wasn’t a doctor on the planet that had anything encouraging to say to me about my condition. If it wasn’t for the loving support of my husband and his faith that we would find a way through the nightmare, I honestly don’t know what would have happened to me. As many of you have already discovered, turning to the internet for support or advice or help of any kind with this condition can be a bit dangerous. Most of the websites out there, and a great number of them have popped up in the last 5 Years, can bring up feelings of hopelessness and doom. When I created this website in 2010, I couldn’t walk, in fact I could barely move my arms at the time, but I had just got my mind back and I wanted to use it. I set out to create a website that would bring a positive message of hope to those who needed it the most. I also wanted to create a website that would bring awareness to the masses, not only to the dangers of fluoroquinolone antibiotics but to the dangers of most medications on the market today, and ultimately an understanding that with a natural approach to healing, you can recover from many common and not so common ailments. There is hope. There is always hope and you should never give up. Today is September 21st 2016, it has been just over six years since I took Cipro and my life was turned upside down. And I can honestly say, that after everything I have been through, all the pain and suffering, the terror attacks, the trauma my family endured, the time lost… I WOULD NOT CHANGE A THING.
In all honesty, I am a better person today than I was pre-fluoroquinolone. I am stronger, wiser, healthier and happier. I have been through hell, yes, but it’s because of that suffering that I now know how sweet life really is. How precious my body is. How precious my mind is. How precious my spirit is. I wake up every day (well, almost everyday – haha) excited for what the day will bring. I love my family, I love my work (which was birthed through my recovery), I love life. And I love all of you. You have all been through so much, and I know that each and every one of you have been called upon, just like I was, to WAKE UP. As you heal and navigate your way through the fog and muck, you are growing. Not in the way a child grows, but in the way a SOUL grows. You are waking up to the truth. In the depths of your despair you are learning that life is short, with or without an illness to take you down. You are learning that life is sweet, even in the bitterness. You are learning that for most of your life pre-flox, you weren’t even living. And now you are here. And now you have a chance to do things differently. Now you can truly live the life you were born to live. A life of presence and meaning and truth and love.
And if you are at all like me, you will one day ask yourself, “would I have ever got here if the FQ didn’t take me down?” Would I have ever stopped taking my life for granted? Would I have ever treated my body like a temple? Would I have ever stopped living in my head? Would I have ever truly known my own heart the way I do now? Would I have ever known God and my own divinity?
It’s been 6 years. I am doing great. I was one of the worst cases, as most of you know. I didn’t use any toxins (i.e. drugs) to recover. I recovered different than most because I only used natural and homeopathic remedies. I started detoxing right away. I went way outside the box for treatment. I was more radical and extreme than most in my choices. I was filled with faith that the natural path was the only path.I stuck to my plan. I had a lot of support. And I made it.
Last summer (2015) I did something that I never thought I would do again. I traveled overseas. For a month. I’m so healthy that it never crossed my mind that I would have a mobility issue, or a nervous system breakdown. I planned a trip of a lifetime. I went to France, Italy and Greece. I did all the things I wanted to do. I climbed anywhere from 100 to 1000 steps a day. I didn’t fatigue. My feet didn’t swell. My joints didn’t ache. It was amazing. A dream come true. And on more than one occasion, it crossed my mind, where I was in that moment and where I had been exactly 5 years earlier. It was almost unbelievable to me how far I had come. How much my life had changed. How difficult it was for me to believe my own biography. Was that really me?
And that is my prayer for all of you. That one day soon you look back on this real life horror story and have difficulty imagining that it was real. That one day soon you will tell someone who thinks they know you pretty well, that you were horribly ill because of fluoroquinolones, and they won’t believe it because you seem so healthy and vital.
To date, I have damage to my retinas, subsequent to a condition I developed called erythema nodosum (likely a post FQ gift according to dr.’s), which caused blind spots and distortions in my vision that can make focusing on details difficult, but I manage. I still get swollen achy feet if I don’t exercise regularly and keep my lymphatic fluid moving. My memory isn’t the best, but from what I’m told, it’s only a little worse than most people my age. About 6 months ago I had an emergency dental surgery called an apicoectomy, which required that I take ampicillin. I was nervous, but I have been feeling so “over” Cipro, that I was able to remain calm and suffered no side effects. And I have recently been diagnosed with a fungal condition called Glabrata, which is known to be caused by fluoroquinolones. I had an angry outburst when I realized that they were related, a little pity party, but I got over it within the hour. Life is short. I’m alive, my wheelchair is rotting in the garage, I think I can handle this. Otherwise, well, I’m 45. I’m starting to age and there are factors related to age that are annoying and bothersome, but it’s nice to have the thought “i’m getting old” flitter through my head, rather than, “now what has Cipro done to me???”
I’ve learned a lot these last 6 years. There are some things I would have done differently, like I would have started pumping the probiotics into my system right out of the gate. I also would have alkalized my body within the first year (after the shock eased up) and I would have explored certain vibrational therapies immediately had I known about them. But I would not change much else. Keep it clean, go natural, stay focused and strong willed, never give up. Those are the keys to success here. And I hope that each and every one of you discover for yourselves the value of honoring your bodies, minds and spirits like I have. It will carry your through your battle with fluoroquinolone toxicity and beyond. Many blessings to you all, dear sweet friends. I wish you all a speedy recovery and an awakening to be cherished for the rest of your lives! Namaste!