KEEP A POSITIVE MINDSET!
Because of the insidious nature of this illness, it is more important than ever to keep a positive outlook. Not only are you going to be inundated with horror stories, devastating statistics, and very little support from the medical community, but you will most likely be battling some depression, anxiety and fear, all of which can lead to an altered state of mind and some extremely negative thinking. It is my humble opinion that negative thinking can put your life at risk under these extraordinary circumstances. For this reason, you must be very careful to keep your eye on the horizon. This syndrome takes a big toll on your life and it doesn’t resolve itself quickly, so you need to protect your mindset and build up your endurance. That means not weakening yourself with unnecessary stress. So, as a rule of thumb, if it is not necessary, and it takes your energy, ditch it. Protect yourself from anguish at all costs. In fact, right now I am on a “need to know” basis concerning stressful information in my peripheral life. For example, if my neighbor gets robbed, I don’t want to know about it because I will worry, and that won’t help anyone (especially not me), so my husband shields me from that type of information. This is a big deal for me, partially because I am nosy and partially because I am a control freak! I want to know EVERYTHING, but as it turns out, NOT knowing is good too! So monitoring your input is crucial. Think about the people in your life. Do they support you? Do they stress you out? Do they take energy from you? Think about the TV you watch. Does it cause you to worry about things outside of your control? Does it depress you? Does it scare you or overstimulate you? Once you start looking at all facets of your life, and making good choices and appropriate changes, you will begin building a life that supports a positive outlook, and that is exactly what you need right now.
And as it turns out, when the life you have always known is suddenly threatened or becomes unrecognizable, finding God is pretty common. Of course “God” can mean something different to each of us, and what God means to you may become a big part of your story. Staying positive often takes one on a path of spirit, and if this brings you comfort or peace, it is a very worthy undertaking. In my experience, nothing can bring you down faster than a bad attitude, negativity, anger, or fear. In fact, I have found fear to be the most destructive emotion when you are seeking wellness. So first and foremost, ditch the bad attitude, resist the negativity, and start looking, no matter how deep you have to dig, for something, anything, to keep you positive. I strongly recommend reading (if you haven’t read Eckhart Tolle’s The Power of Now, this is a great place to start), meditating, inspirational movies, light socializing (even if a friend just stops by for 20 minutes it will help you to feel a little normal), daily time outside in the sun (20 minutes a day is recommended if you don’t have sensitivity), a spiritual practice, colorpuncture and doing as many normal things as you can manage. So far, these things have worked for me.
On the flip side, there are some things that have NOT worked for me at all, and have made staying positive extremely challenging. The most damaging is surfing the web. Yes, I realize you are on the web right now, and that is why I made this website! I hope this website will give you stuff to think about and process that won’t bring you down! So again, success stories are welcome and encouraged! PLEASE! Anything that gives a person hope when their lives have seemingly been destroyed, is a good thing. I have not found a lot of good things on the internet. There are so many sites that discuss Cipro side effects and they have nothing encouraging to say at all. Almost everything I read describes a hopeless situation and a devastating prognosis. I have found far too many websites where people list their devastating ailments and talk about how nothing helps. I have seen many stories that resembled my own, and had a wretched outcome. I hope no one will take offense by my NOT wanting to read all of these very tragic stories, please do not misunderstand, I have a tremendous amount of compassion for these people, and I wish I could do something to change their circumstances, and I know they need to vent and that many of them are just hoping to find some help. Its just that when I am feeling as low as I think a person can feel without actually seeking death, I need to know that a positive outcome is POSSIBLE. I don’t really care how likely or probable that outcome is, I just want to know that it exists. If it is possible, then I will keep fighting, seeking and enduring. So, if you are going to surf the web, be careful. Use your Google wisely, and as soon as you recognize a website to be one that has the potential to destroy your outlook or squash your hope, get off the internet and go read a book or call a friend. Do not stay up all night reading real life horror stories and relating them to your own condition. Nothing good can come of that, I promise.